Patient Perceptions in NFT-Based EHRs:
A Qualitative Phenomenological Study
Travis Wiley, Doctoral Candidate
·American College of Education Doctoral Dissertation
About the Study
Understanding How People Feel About Owning Their Health Records
Today, your medical records are often scattered across hospitals, insurance companies, and clinics — and you have limited control over who sees them. Blockchain technology and digital tokens called NFTs (Non-Fungible Tokens) could change that, giving individuals verifiable ownership of their own health data.
This study is an American College of Education doctoral dissertation exploring how U.S. adults feel about this idea. Specifically, we want to understand:
- Ownership: What does it mean to truly "own" your health records stored as a digital token?
- Trust: How comfortable would you feel with a system that lets you control who can access your medical data — including the ability to grant or revoke access?
You do not need to be a technology expert. We are interested in everyday people's perspectives, impressions, and questions about this emerging concept. Your voice matters in shaping how these systems are designed.
Do You Qualify?
Who Can Participate
You Are Eligible If…
- You are 18 years of age or older
- You are a current U.S. resident
- You have an interest in or awareness of NFTs, blockchain technology, or digital health records
- You are open to exploring digital health platforms or emerging health technologies
- You are willing to participate in a short recorded video interview
Who Is Not Eligible
To maintain research rigor, this study excludes individuals whose professional expertise may significantly influence their responses:
- Healthcare professionals (doctors, nurses, pharmacists, etc.)
- Information technology developers or software engineers
- Healthcare policymakers or regulators
What to Expect
Simple, Convenient, Flexible
Participation is entirely virtual — no travel required. We work around your schedule.
Express Interest (2–3 minutes)
Fill out the short interest form on this page. This helps the researcher understand your background and assess whether you meet the study criteria. There is no commitment at this stage.
Zoom Video Interview (30–45 minutes)
VirtualIf selected, you will participate in a one-on-one Zoom interview with the researcher. The interview is recorded with your consent, and you may stop the recording or end the interview at any time. Questions are open-ended and conversational — there are no right or wrong answers.
Informed Consent Summary
Your Rights as a Participant
Below is a plain-language summary of key consent points. You will receive the full informed consent document before any interview begins.
Voluntary
Participation is completely optional. You may withdraw at any time without penalty or loss of benefits.
Confidential
No personally identifiable information will appear in published findings. All data is de-identified.
Secure Data
Recordings and transcripts are encrypted and stored securely. All data will be permanently deleted 3 years after the study per NIH guidelines.
No Compensation
There is no monetary compensation for participating. Your contribution helps advance healthcare innovation research.
IRB Approved
This study has been reviewed and approved by the American College of Education Institutional Review Board.
Express Interest
Ready to Participate?
Fill out this short form and the researcher will follow up within a few business days. Submitting this form is not a commitment to participate — it simply lets us know you are interested.
Contact & IRB Information
Questions Before You Decide?
You are encouraged to ask any questions about the study before deciding to participate. All inquiries are handled with full confidentiality.
Principal Investigator
Travis Wiley
Doctoral Candidate, American College of Education
travis.wiley7388@my.ace.edu812-264-9701Dissertation Chair
Dr. Margaret Aker
Faculty Dissertation Chair, American College of Education
IRB Approval
This study has been reviewed and approved by the Institutional Review Board (IRB) at the American College of Education.
IRB approval ensures this research meets all ethical standards for human subjects research.